Jordyn Walker's distraught family just want to know what's wrong with their beloved daughter.
This story originally appeared on Fox News and has been republished here with permission.
A US teen has been left blinded by a mystery illness that has plagued her since she returned from a family cruise in July 2017.
Jordyn Walker, 15, from Missouri, was a passionate photographer and manager of her school baseball team before an unknown illness changed her life forever.
Her symptoms first started shortly after returning home from a family cruise.
Jordyn before she was struck by the illness that has baffled doctors. Source: GoFundMe
Gaining Distance from Family Members
Doctors were initially confused when Jordyn presented with severe stomach pain and blood in her stool.
Tests came back negative and she was sent home under the impression she had suffered a sinus infection.
Soon after this, the illness progressed, robbing her of her sense of taste and smell.
Her family watched in horror as pressure built behind her eyes and her face swelled and turned purple, local television station Fox4KC.com reported.
Doctors assured her family there was a “one in a million” chance of returning, but last month she was raced to the paediatric intensive care unit at the University of Kansas Hospital with the same symptoms.
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After 16-days of testing and two surgeries to reduce the swelling in her face and eyes, Jordyn was told the still-undiagnosed mystery illness had left her permanently blind.
“There’s no answers,” Kendyll Walker, the teen’s mother, told Fox4KC.com.
“Nothing you can do.”
Jordyn with her family. Source: GoFundMe
Every test negative
The family said every test performed on the teen has come back negative and they still had no idea what was plaguing her body.
A GoFundMe page established to collected money for her testing has listed her symptoms and potential diagnoses already considered, in the hopes that a doctor somewhere in the world may come across the case and offer new solutions or theories.
“There has been no diagnosis to determine the cause of this event,” the ‘Jordyn Walker Has Gone Blind’ GoFundMe page detailed.
The charity page organisers said Jordyn displayed many symptoms that point to a form of auto-immune disorder or vasculitis.
“More research and testing will need to be done to determine an overall diagnosis,” they wrote.
Jordyn was released from hospital on New Year’s Eve.
Her family said they were hoping to plan a trip to the Mayo Clinic in Minnesota for “further testing.”
Trust your mommy gut. No one knows your child better than you. Follow your instincts when it comes to his health and well-being. If you think something's wrong, chances are you're right.
The brave teen is determined not to let the illness destroy her. Source: GoFundMe
Her mother, Kendyll Walker, described the heartbreak her youngest daughter will feel at not being able to learn how to drive, or ever be able to see her two older sisters get married.
“It was terrifying to watch it happen all over again and knowing we couldn’t do anything about it,” she told the Fox4KC.com.
Videos posted to the “Jordyn’s Cause Funding Research and Recovery” Facebook page showed the family celebrating Christmas in the hospital with Jordyn, and her being reunited with her dog.
One video taken before she was told she had lost her eyesight heard her wish to see again.
“Before the onset of Jordyn’s illness, she participated in many things that greatly relied on her eyesight,” the GoFundMe page said.
“Jordyn has always been an avid reader and spectacular writer. She is passionate about photography and is the lead editor of her school’s journalism program.”
It also described her as a key member of her school’s archery team, and manager of the baseball team.
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“Please spread the word,” the post said. “The human spirit burns brightest when we are united to solve a problem. We can’t imagine that her condition is so rare or so unique that it is beyond medical science in 2019.”
Jordyn told Fox4KC.com that she won’t let the illness stand in her way of a positive future.
“I’m not going to let this stop me,” she said.